The Still Point of the Turning World
By Emily Rapp
(Penguin Books, Paperback, 9780143125105, 272pp.)
Publication Date: February 25, 2014
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A brilliant study of the wages of mortal love.” The New York Times Book Review
What does it mean to be a success? To be a good parent? To live a meaningful life? Emily Rapp thought she knew the answers when she was pregnant with her first child. But everything changed when nine-month-old Ronan was diagnosed with Tay-Sachs disease, a rare and always-fatal degenerative disorder. He was not expected to live beyond the age of three. Rapp and her husband were forced to re-evaluate everything they thought they knew about parenting and to learn to parent without a future.
Even before the book’s publication, Rapp set the Internet ablaze with her New York Times op-ed piece about parenting a terminally ill child. An immediate bestseller, The Still Point of the Turning World is Rapp’s memorial to her lost son and an inspiring and exquisitely moving reminder to love and live in the moment.
Emily Rapp, the recipient of a Rona Jaffe Writers’ Award, is currently professor of creative writing and literature at the Santa Fe University of Art and Design and a faculty member in the University of California-Riverside MFA program. She lives in Santa Fe, New Mexico.