"Savior Siblings" and One Family's Battle to Heal Their Daughter
By Beth Whitehouse
(Beacon Press (MA), Paperback, 9780807001219, 255pp.)
Publication Date: March 8, 2011
List Price: $16.00*
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My Sister’s Keeper in nonfiction: a family’s real-life struggle to cure their daughter by creating her genetic match
Katie Trebing was diagnosed at three months old with Diamond Blackfan anemia, a rare form of anemia that prevents bone marrow from producing red blood cells. Even with a lifetime of monthly blood transfusions, she faced a poor prognosis. Pulitzer Prize–winning journalist Beth Whitehouse follows the Trebings as they make the decision to create a genetically matched sibling using preimplantation genetic diagnosis (PGD) and in vitro fertilization, and proceed with a risky bone-marrow transplant that could kill their daughter rather than save her. The Match is a timely and provocative look at urgent issues that can only become more complex and pressing as genetic and reproductive technologies advance.