A Mother's Journey
By Laurie Strongin
(Hyperion, Hardcover, 9781401323561, 288pp.)
Publication Date: March 1, 2010
List Price: $22.99*
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--David Shenk, author of The ForgettingSaving Henry is the eye-opening and inspiring story of how far a family will go to save the life of their child. Laurie Strongin's son Henry was born with a heart condition that was operable, but which proved to be a precursor for a rare, almost-always fatal illness: Fanconi anemia. Deciding to pursue every avenue that might provide a cure, Laurie and her husband signed on for a brand new procedure that combined in vitro fertilization with genetic testing to produce a baby without the disease, who could be a stem cell donor for Henry. As Laurie puts it: "I believe in love and science, nothing more and nothing less." Laurie and her husband endured nine failed courses of the procedure before giving up. But Saving Henry is also about hope. It is the story of Henry, the feisty little boy who loved Batman, Cal Ripken Jr., and root beer-flavored anesthesia, and who captivated everyone with his spunk and positive attitude. When the nurses came to take blood samples, Henry brandished his toy sword and said, "Bring it on " When he lost his hair after a chemo treatment, he declared, "Hey, I look like Michael Jordan " Laurie became a fervent advocate for stem cell research, working with policymakers and the scientific community to bring attention to Henry's case and to the groundbreaking research that could save many lives. Henry's courage and bravery inspired nurses, doctors, friends, and family. Saving Henry is the story of one family's search for a cure, and the long-lasting scientific impact their amazing little boy has had.
Laurie Strongin is the Founder and Executive Director of Hope for Henry Foundation, which brings smiles and laughter to seriously ill children. Prior to that, Laurie was Senior Director of Wealth Creation at the Fannie Mae Foundation. Laurie also acts as a family advocate in the ongoing national discussion about ethics and genetics. She has participated as a panelist and guest lecturer in a range of forums hosted by the Johns Hopkins Genetics and Public Policy Center on preimplantation genetic diagnosis. In 2006, Laurie joined Nancy Pelosi to urge the Senate to pass the Stem Cell Research Enhancement Act. That summer, Laurie published an Op-Ed in the Washington Post. She and her family were featured on Nightline, and in a New York Times piece, as well. Laurie is a regular panelist on Clear Channel's Sunday radio program, "Women Talk," broadcast in the Washington, D.C. area on WMZQ, WASH-FM, WBIG and DC101. She lives in Washington, D.C.